We [Ava’s Voice, Usher Kids UK and Usher Kids Australia] are working together to share knowledge and facilitate connections across our rare community. Register now to receive information about our 2021/’22 program of events (open to everyone, regardless of location).
Origin of F2FC
The Family-to-Family Communities (F2FC) project is a partnership between the National Family Association for Deaf-Blind (NFADB), the National Center on Deaf-Blindness (NCDB), and State Deaf-Blind Projects. Partners participate in the F2FC project by sharing resources, expertise, time, and effort.
F2FC began as a pilot project among Southeast State Deaf-Blind Projects with support from the National Center on Deaf-Blindness (NCDB) and the National Family Association for Deaf-Blind (NFADB). The pilot project was conducted during 2014-2015 and consisted of two groups. It has grown to 15 unique groups during 2020-2021.
Often families who ‘get it’ are the best Usher experts you can meet! Join these sessions to share experiences and support with other families
Topic-based sessions (USHlearn)
We will host speakers and share information / resources on topics relevant to children and families living with Usher syndrome. There will be the opportunity to ask questions, and to discuss the topic with other participants
Save the Dates
September 16th/17th International meet/greet
October 21st USHchat
November 18th USHlearn
December 16th USHchat
January 20th USHlearn
February 17th USHchat
March 5th/6th USHangouts (virtual)
April 21st USHlearn
May 19th USHchat
June 16th USHlearn
July 8-10th USHangouts (in-person)
August (dates tbc) USHthis / USHfamily camps
Topics for USHlearn sessions have been selected based on feedback from parents/families. We will continue to gather and respond to family feedback in shaping our programmes and resources.
National Family Associaton for Deaf-Blind
The National Family Association for Deaf- Blind (NFADB) is a nonprofit, 501(c)(3) organization that has served families with individuals who are deaf-blind since 1994.
NFADB believes that individuals who are deaf-blind are valued members of their communities and should have the same opportunities and choices as others in the community.
The mission of Ava's Voice is to empower youth with Usher syndrome and to educate families and school communities.
501c3 Tax ID #47-4326466
First and foremost, on behalf of Ava's Voice, our hearts are with all of those affected by COVID-19 and their families. This is a very confusing and unprecedented time for all of us. Many of our upcoming initiates for the remainder of 2020 and 2021 provide face-to-face opportunities. Our Ava's Voice Board of Directors, with the guidance of the up to date information released by the CDC, will make decisions accordingly for those events. Please return to each initiative page for up to date information. In the meantime, be safe, stay healthy and enjoy this unexpected quality time with your loved ones.