USHbrothers

The USHbrothers, Ethan (23) and Gavin (20) are originally from Toronto Canada, and currently live in New Jersey. These two proud Canadian boys were born profoundly deaf and diagnosed with Usher syndrome type 1B in 2009 when they were seven and five years old. They met this challenge head-on by being early advocates for themselves, […]
Lilly’s Vision

My name is Lilliana Cancellieri. Everyone calls me Lilly. I was given an initial diagnosis of severe-to-profound deafness at birth and there started a long journey of fighting for my future. My parents were my champions until I became my own. I was Cochlear implanted bilaterally at 8 and 28 months. From there, I took […]
Jordyn’s Voice

“Alone, we can do so little; together, we can do so much” -Helen Keller Ever since birth, I have had hearing loss. At the age of 13, I was diagnosed with Usher syndrome. I had a retinal tear in my left eye which caused me to notice that loss in peripheral vision. My doctors decided […]
Galen’s Voice

Galen and his mom are joined forces to raise funds for Ava’s Voice, an official partner of the Usher Syndrome Coalition. Ava’s Voice focuses on empowering youth with Usher Syndrome as they take on the world! Galen attended his first USHthis Camp in June 2023 held in New Jersey, USA. Not only was this Galen’s […]
Ava’s Voice

Coming Soon!