USHthis Summer Youth Camp is a week long sleep away camp for youth with Usher syndrome, ages 11-17. Join us for a 6 day adventure on the grounds of Forest Lake Camp which holds some of the most breathtaking views in the Adirondack Mountains.

USHthis 2022
Sponsored by The Gilson Family Foundation


Meals, lodging and activities are sponsored through The Gilson Family Foundation. There is a nominal registration fee, for campers, that includes camp attire and supplies.

Registration fees apply once campers are accepted.


Travel costs to and from camp are the responsibility of the camper, counselors and staff. We encourage you to reach out to local organizations and agencies that may be able to alleviate some of these costs. If interested, we will connect you to one of our Ava’s Voice Parent Ambassadors to learn how. Limited travel scholarships are available once all other resources are exhausted.


Camp will provide an opportunity for youth with Usher syndrome (ages 11-17) to engage with peers, peer counselors and adults with Usher syndrome, learn about available resources, acquire strategies to resolve challenges and foster connections that will last a lifetime. Campers, ages 15-17, may be selected for Counselor in Training opportunities.


Young adults with Usher syndrome (ages 18-24) who are interested in being a mentor to our youth campers and discovering more about themselves in the process may apply. Counselors will embark on this journey with their peers and be a role model to campers. Experience preferred, but not required.


Are you ready to get inspired? Join our team, disconnect from the world and get ready to be immersed in an experience of a lifetime. We are always looking for volunteers and professionals looking to expand their knowledge and experience with the deafblind community. All accepted applicants will be required to go through our official application process and background check.



USHthis is the main initiative of Ava’s Voice Inc. Ava’s Voice was established in 2015 by Ava’s mom, Carly Fredericks, and her family. Once Carly saw first hand the connection Ava had when provided the opportunity to connect with her peers, she couldn’t help but think about all children living with Usher syndrome. In the summer of 2018, Ava and the other Ava’s Voice Ambassadors, USH brothers Ethan and Gavin Morrobel, attended a local event on the Jersey shore. After riding the waves all day, Gavin continued to show off his skills ending the day with a standing backflip on the lawn. Carly screamed in excitement, “USH THAT”! Gavin responded in confidence, “USH THIS” and so the name it became. USHthis, an Usher friendly place, to Dream it. Believe it. crUSH it.



FLC Director, Brett Booker, describes his experience with USHthis


Stay connected with
USHthis Summer Youth Camp

We are very happy to announce our discUSH Family Retreat initiative for Summer 2021. We look forward to continuing our traditional discUSH Family Program and USHthis Summer Youth Camp in the future.

In planning USHthis 2021 we have taken into consideration government guidelines and the safety concerns of parents. After looking at all possible eventualities, we believe we have created a fabulous opportunity for kids to go to camp AND for parents to feel safe sending them…because they will be right there with them!