All Carly Fredericks could dream for her baby at that very moment she was told she couldn’t hear was that she would have a voice in the world. Regardless of her mode of communication she would be “heard”. She would thrive as an active member of society and accomplish everything her little heart set out to do. Little did she know, Ava, would do more than that. She would be on a path to share her story and be part of a larger mission to support children and families across the world.
When Pam, her husband and her two boys with Usher syndrome relocated to the USA from Canada,they didn’t know the silver lining that would shine through on one of the biggest moves of their life. Advocating was always their priority and making connections with other families was what they always yearned for. Once this dynamic duo of moms connected, their visions aligned. They wanted to share their experiences and more importantly provide opportunities for all USH families to have the beautiful friendships their families built.
The mission of Ava's Voice is to empower youth with Usher syndrome and to educate families and school communities.
501c3 Tax ID #47-4326466
First and foremost, on behalf of Ava's Voice, our hearts are with all of those affected by COVID-19 and their families. This is a very confusing and unprecedented time for all of us. Many of our upcoming initiatives for the remainder of 2020 and 2021 provide face-to-face opportunities. Our Ava's Voice Board of Directors, with the guidance of the up to date information released by the CDC, will make decisions accordingly for all upcoming events. Please return to each initiative page for up to date information. In the meantime, be safe, stay healthy and enjoy this unexpected quality time with your loved ones.