Ava’s Voice relies heavily on the contributions of our supporters to continue our mission. We are humbled and honored to carry out our mission with your confidence. While we will always remain hopeful for a cure, Ava’s Voice believes that the awareness, education and resources are instrumental to the success of our children while they learn to navigate the unknown world of Usher syndrome. Consider making a monthly donation to support all Ava’s Voice initiatives!
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USHthis Summer Youth Camp is a week long sleep away camp for youth with Usher syndrome, ages 11-17. It is a 6 day adventure on the grounds of Forest Lake Camp which holds some of the most breathtaking views in the Adirondack Mountains.
Buy a shirt and help send a youth with Usher syndrome to USHthis summer youth camp!
The mission of Ava's Voice is to empower youth with Usher syndrome and to educate families and school communities.
501c3 Tax ID #47-4326466
First and foremost, on behalf of Ava's Voice, our hearts are with all of those affected by COVID-19 and their families. This is a very confusing and unprecedented time for all of us. Many of our upcoming initiates for the remainder of 2020 and 2021 provide face-to-face opportunities. Our Ava's Voice Board of Directors, with the guidance of the up to date information released by the CDC, will make decisions accordingly for those events. Please return to each initiative page for up to date information. In the meantime, be safe, stay healthy and enjoy this unexpected quality time with your loved ones.