Presented by Ava’s Voice
• 2020 USH Connections Virtual Conference
Youth with Usher syndrome, generationally defined as Gen Z or iGen, are known as cloud natives rather than digital natives. Their world is “iEverything,” with a lowercase “i.” Through the world of technology, information is at their fingertips and most friendships start at the download of an app. While we are grateful for the technology that is available, children yearn for the opportunity to meet others like themselves in person.
USHangouts is an opportunity for youth with Usher syndrome (birth-17years) to make face-to-face connections with their peers at the annual USH Connections Conference. There are programs designed specifically for three age groups, and counselor opportunities are available for adults with Usher syndrome (ages 18-21)
USHangouts 2020 Recap
2020 USHangouts Virtual RECAP
USH Moms, Carly Fredericks & Pamela Aasen, share their experience in an open discussion about their children's journey. You also hear from the teens themselves.
Make a cocktail with the host
Non-alcoholic version available
Suggested liquor: Stoli Orange or White Rum
Mixer: Pineapple Coconut Club Soda, 7UP or Flavored Club Soda of Choice
Garnish: Fresh Orange
USHthis Strength Coach
Rebecca Alexander, USHthis Strength Coach, pops in to inspire our youth and answer their burning questions. She shares her wisdom and experience with our mentors and provides a safe environment for USHkids and their siblings to talk openly in an Usher friendly environment.
DIY Self Advocacy Activities, Tips & Tricks
Ava, Ethan and Gavin share two activities they like to use when educating their peers and school communities.
This is an opportunity to ask Ava, Ethan and Gavin questions you may have or on behalf of your children. They take pride in sharing their stories and are open to any question you may have!
Would you like to receive update information about USHangouts 2021?
The mission of Ava's Voice is to empower youth with Usher syndrome and to educate families and school communities.
501c3 Tax ID #47-4326466
First and foremost, on behalf of Ava's Voice, our hearts are with all of those affected by COVID-19 and their families. This is a very confusing and unprecedented time for all of us. Many of our upcoming initiatives for the remainder of 2020 and 2021 provide face-to-face opportunities. Our Ava's Voice Board of Directors, with the guidance of the up to date information released by the CDC, will make decisions accordingly for all upcoming events. Please return to each initiative page for up to date information. In the meantime, be safe, stay healthy and enjoy this unexpected quality time with your loved ones.