Monthly Family Support Calls

Our Mission

We [Ava’s Voice, Usher Kids UK and Usher Kids Australia] are working together to share knowledge and facilitate connections across our rare community. Register now to receive information about our 2021/’22 program of events (open to everyone, regardless of location).

Origin of F2FC

The Family-to-Family Communities (F2FC) project is a partnership between the National Family Association for Deaf-Blind (NFADB), the National Center on Deaf-Blindness (NCDB), and State Deaf-Blind Projects. Partners participate in the F2FC project by sharing resources, expertise, time, and effort.

F2FC began as a pilot project among Southeast State Deaf-Blind Projects with support from the National Center on Deaf-Blindness (NCDB) and the National Family Association for Deaf-Blind (NFADB). The pilot project was conducted during 2014-2015 and consisted of two groups. It has grown to 15 unique groups during 2020-2021.

Social & Emotional (USHchat)

Often families who ‘get it’ are the best Usher experts you can meet! Join these sessions to share experiences and support with other families

Topic-based sessions (USHlearn)

We will host speakers and share information / resources on topics relevant to children and families living with Usher syndrome. There will be the opportunity to ask questions, and to discuss the topic with other participants


Registration has now closed. If you're interested in participating in the rest of the year please email avasvoice@gmail.com.

Save the Dates


  • September 16th/17th International meet/greet
  • October 21st USHchat
  • November 18th USHlearn


  • January 20th USHlearn
  • February 17th USHchat
  • March 5th/6th USHangouts (virtual)
  • April 21st USHlearn
  • May 19th USHchat
  • June 16th USHlearn
  • July 8-10th USHangouts (in-person)
  • August (dates tbc) USHthis / USHfamily camps

Additional Information

Topics for USHlearn sessions have been selected based on feedback from parents/families. We will continue to gather and respond to family feedback in shaping our programmes and resources.

National Family Associaton for Deaf-Blind

The National Family Association for Deaf- Blind (NFADB) is a nonprofit, 501(c)(3) organization that has served families with individuals who are deaf-blind since 1994.

NFADB believes that individuals who are deaf-blind are valued members of their communities and should have the same opportunities and choices as others in the community.