Usher syndrome is the most common genetic cause of combined deafness and blindness. More than 400,000 people are estimated worldwide. Usher syndrome impacts three major senses: hearing, vision and balance. There are several types and subtypes that have an impact on the loss and progression of this syndrome.
The mission of Ava’s Voice is to empower youth with Usher syndrome and to educate families and school communities.
Our Mission
The mission of Ava’s Voice is to empower youth with Usher syndrome and to educate families and school communities.
USH Partner
Ava’s Voice is honored to be an official partner of the Usher Syndrome Coalition. The Usher Syndrome Coalition and Ava’s Voice, each have a common interest in building and supporting the global Usher syndrome community and meeting the diverse needs within the community.
