
Ava’s Voice is more than a nonprofit organization—it’s a vibrant, community-driven movement dedicated to uplifting individuals with Usher syndrome and their families. With a mission to foster meaningful connections, provide unwavering support, and champion advocacy, Ava’s Voice empowers youth and young adults to overcome challenges and thrive. Seeing the peer-to-peer, mentor, and role models connections that have developed through our programs, we are commited to help facilitate connections to our global community.
This space is dedicated to elevating the voices of individuals with Usher syndrome and their families. It’s a place to share their stories, their love for their Usher syndrome community, and support to advance programs that are close to their heart.
Never underestimate the power of connections and as we believe…dream BIG
Want to connect with your Usher syndrome community? Connect with our Community Engagement Coordinator, Carolyn Bradfield, at USHvoices@avasvoice.org
Galen and his mom are joined forces to raise funds for Ava’s Voice, an official partner of the Usher Syndrome Coalition. Ava’s Voice focuses on empowering youth with Usher Syndrome as they take on the world! Galen attended his first USHthis Camp in June 2023 held in New Jersey, USA.
“Alone, we can do so little; together, we can do so much” -Helen Keller Ever since birth, I have had hearing loss. At the age of 13, I was diagnosed with Usher syndrome. I had a retinal tear in my left eye which caused me to notice that loss in
My name is Lilliana Cancellieri. Everyone calls me Lilly. I was given an initial diagnosis of severe-to-profound deafness at birth and there started a long journey of fighting for my future. My parents were my champions until I became my own. I was Cochlear implanted bilaterally at 8 and 28
The USHbrothers, Ethan (23) and Gavin (20) are originally from Toronto Canada, and currently live in New Jersey. These two proud Canadian boys were born profoundly deaf and diagnosed with Usher syndrome type 1B in 2009 when they were seven and five years old. They met this challenge head-on by
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