An opportunity for families of children with Usher syndrome, birth to 10 years old.
discUSH Family Weeknd
261 Forest Lake Road Chestertown, NY 12817
May 21st-23rd 2021
Connect, share, and learn on the beautiful grounds of Forest Lake Camp where memories are made and dreams are created! Our discUSH Family weekend is an opportunity for parents and guardians of children with Usher syndrome, birth to 10 years old, to gather in an Usher friendly environment.
Family rate includes two adults and one child with Usher syndrome (birth-10 years old). Also Includes single family cabins, Friday Evening Social, Saturday meals, Sunday breakfast & lunch, accommodations, activities and discUSHions.
Children birth - 4: FREE 5 -10: $120 11 and up: $230
Our discUSHions will be facilitated by our Ava's Voice Ambassadors and USHthis Strength Coach, Rebecca Alexander. Rebecca is a psychotherapist and author, who was born in Berkeley, California, and currently resides in New York City. Rebecca wrote the book, Not Fade Away, about living with Usher syndrome type III. Throughout the weekend, families will have an opportunity to connect with Rebecca and our ambassadors in small group discussions about topics ranging from diagnosis to self care and advocacy.
Throughout the weekend, mom, dads, kids and the whole family will participate in a variety of activities. Check out some of the adventures that take place at Forest Lake Camp
The mission of Ava's Voice is to empower youth with Usher syndrome and to educate families and school communities.
501c3 Tax ID #47-4326466
First and foremost, on behalf of Ava's Voice, our hearts are with all of those affected by COVID-19 and their families. This is a very confusing and unprecedented time for all of us. Many of our upcoming initiates for the remainder of 2020 and 2021 provide face-to-face opportunities. Our Ava's Voice Board of Directors, with the guidance of the up to date information released by the CDC, will make decisions accordingly for those events. Please return to each initiative page for up to date information. In the meantime, be safe, stay healthy and enjoy this unexpected quality time with your loved ones.