discUSH Family Weekend

An opportunity for families of children with Usher syndrome, birth to 10 years old.

discUSH Family Weeknd

Connect, share, and learn on the beautiful grounds of Forest Lake Camp where memories are made and dreams are created! Our discUSH Family weekend is an opportunity for parents and guardians of children with Usher syndrome, birth to 10 years old, to gather in an Usher friendly environment.

Family Rate

Family rate includes two adults and one child with Usher syndrome (birth-10 years old). Also Includes single family cabins, Friday Evening Social, Saturday meals, Sunday breakfast & lunch, accommodations, activities and discUSHions.


Additional Rates

Children birth - 4: FREE
5 -10: $120
11 and up: $230


Our discUSHions will be facilitated by our Ava's Voice Ambassadors and USHthis Strength Coach, Rebecca Alexander. Rebecca is a psychotherapist and author, who was born in Berkeley, California, and currently resides in New York City. Rebecca wrote the book, Not Fade Away, about living with Usher syndrome type III. Throughout the weekend, families will have an opportunity to connect with Rebecca and our ambassadors in small group discussions about topics ranging from diagnosis to self care and advocacy.


Throughout the weekend, mom, dads, kids and the whole family will participate in a variety of activities. Check out some of the adventures that take place at Forest Lake Camp

Registration is Now OPEN!