“Ava’s Mom” After many years of advocating for Ava, Carly has found a love for the field of Deaf-Blindness. She is now the Family Specialist for the New Jersey Consortium on Deaf-Blindness at The College of New Jersey. She is also the Program Coordinator for iCanConnect/NJ, the Deaf-Blind Equipment Distribution Program that provides telecommunications equipment for individuals with combined hearing and vision loss. Recently she received the honor of becoming a Board Member for The National Family Association for the Deaf-Blind (NFADB). “Ava’s Voice” has been a long time dream for her along with her husband Paul. Mason and Miley, Ava’s siblings, have also become quite the little advocates for their sister and take personal pride in Ava’s Voice.
The mission of Ava's Voice is to empower youth with Usher syndrome and to educate families and school communities.
501c3 Tax ID #47-4326466
First and foremost, on behalf of Ava's Voice, our hearts are with all of those affected by COVID-19 and their families. This is a very confusing and unprecedented time for all of us. Many of our upcoming initiatives for the remainder of 2020 and 2021 provide face-to-face opportunities. Our Ava's Voice Board of Directors, with the guidance of the up to date information released by the CDC, will make decisions accordingly for all upcoming events. Please return to each initiative page for up to date information. In the meantime, be safe, stay healthy and enjoy this unexpected quality time with your loved ones.