First and foremost, on behalf of Ava's Voice, our hearts are with all of those affected by COVID-19 and their families. This is a very confusing and unprecedented time for all of us. Many of our upcoming initiates for the remainder of 2020 provide face-to-face opportunities. Our Ava's Voice Board of Directors, with the guidance of the up to date information released by the CDC, will make decisions accordingly for those events. Our discUSH Family Weekend has been canceled. Our Biennial Gala has been rescheduled to Sunday, September 20th 2020.
We thank you for your patience and understanding during this time. We will keep you abreast of updates as decisions evolve. In the meantime, be safe, stay healthy and enjoy this unexpected quality time with your loved ones.
Board of Trustees
Carly Fredericks, President
“Ava’s Mom” After many years of advocating for Ava, Carly has found a love for the field of Deaf-Blindness. She is now the Family Specialist for the New Jersey Consortium on Deaf-Blindness at The College of New Jersey. She is also the Program Coordinator for iCanConnect/NJ, the Deaf-Blind Equipment Distribution Program that provides telecommunications equipment for individuals with combined hearing and vision loss. Recently she received the honor of becoming a Board Member for The National Family Association for the Deaf-Blind (NFADB). “Ava’s Voice” has been a long time dream for her along with her husband Paul. Mason and Miley, Ava’s siblings, have also become quite the little advocates for their sister and take personal pride in Ava’s Voice.
Ava’s Voice is an official USH Partner of the Usher Syndrome Coalition