Understanding Usher Syndrome

Usher syndrome is a rare genetic condition affecting hearing, vision, and sometimes balance. It is the leading cause of combined deafness and blindness and is categorized into three main types (Type 1, Type 2, and Type 3) based on symptoms and the progression of hearing, vision, and balance issues. Here’s an overview to help parents understand the characteristics of each type:

Supporting a Child with Usher Syndrome

Parents play a vital role in navigating the challenges associated with Usher syndrome. Early diagnosis and interventions can help maximize your child’s development and independence. Staying informed and connecting with support networks, specialists, and organizations like Ava’s Voice can provide valuable resources and encouragement.

USH Partner

Ava’s Voice is honored to be an official partner of the Usher Syndrome Coalition. Together, we share a common goal: to build and support the global Usher syndrome community while addressing its diverse needs. Learn more about specific programming like the USHangouts on our USHearts page.

We are deeply grateful for the many Usher syndrome-specific organizations that work tirelessly to raise awareness and advancing treatments. These collective efforts are vital in addressing the unique challenges faced by our community. At Ava’s Voice, we believe in the power of collaboration and actively seek opportunities to work together, strengthening one another’s initiatives