USHresources

Navigating the world of Usher syndrome can be overwhelming. Between the medical and educational systems, there are so many decisions to consider. Our hope is to share some valuable resources so your family can start a dialogue to make informed decisions for what is best for your family. Explore age related topics and some of the resources and articles that have been developed by Carly and Pam that they identified as needs for their families over the years.

Helpful Downloads

Below are documents available for download.

Ava's Cheat Sheet Template

Ava's Cheat Sheet Example

Ava's Cheat Sheet Original

Collaboration Tips

Accommodations

Educational Resources

Below are great links with educational information for families and professionals.

Advocating as a Family

Finding Balance

Cochlear Journey

The Poetry of the Parent/Professional Relationship

Mark's Moments
TV Show

Meet Ava as She Transitions To A New School District

Ava's Featured Portrait

To Us,
She's Just Ava

Importance of Collaboration in the Educational System

Ava iCanConnect Featured Story

About Ava

Behind a
Closed Door

2017 National Webinar: Educational Considerations for Students with Usher Syndrome

2017 National Webinar: Starting a National Dialogue on Finding Children with Usher Syndrome

2018 National Webinar: iCanConnect - The National Deaf-Blind Equipment Distribution Program

NFADB Podcast Featuring Carly Fredericks

Community Topics and Links

need to add

Deaf-Blind Projects

We would also encourage you to connect with your state Deaf-Blind projects for free technical assistance and local resources.